he asked. Stunned, I suddenly felt like a weight had been lifted: Although she looked horrible and I couldn't do anything to ease her pain, my little girl could talk!

Harsh discipline can actually thwart the development of the child by undermining their confidence and weakening the parent-child connection. Craniosynostosis is an abnormal condition when a cranial suture fuses too early. Metopic ridging (MR) is treated nonsurgically while metopic craniosynostosis (MCS) is treated surgically. You can schedule an appointment or send an email with questions. Craniosynostosis leads to two major problems. he said. Is there something wrong with my child? If your ds does have metopic fusion (diagnosed with a CT scan) you would then meet with a neurosurgeon and craniofacial surgeon to discuss what (if anything) needs to be done. Three days later we made the four-hour drive to Baltimore to see Benjamin Carson, MD, a renowned pediatric neurosurgeon at Johns Hopkins Children's Center. Masons have proudly served the trade for over 220 years. Where these bones meet are called sutures. "We get so many worried parents," the doctor said. A few minutes later she returned with the doctor, who quickly declared that the ridge was harmless. [For tips on finding medical info online, go to womansday.com/info.]. I was amazed that Jimmy was able to match Jordan's symptoms with a diagnosis, though he's always been a bit of a whiz with computers. "Come take a look at this." The most severe have: A narrow forehead with a noticeable ridge in the midline I just noticed my 6month old daughter's front soft spot is barely there. "I'm sure it's nothing, but let me grab the pediatrician just in case.". But at 20 months, she stopped forming new words. I was shaking and crying so hard, the nurses forced me to leave the room, though I could hear Jordan screaming, "No, no, pwease no!". Virtual Babysitting Is Winning Over Parents, Why You Have Vivid Dreams During Quarantine, The Best Indoor Plants to Liven Up Your Home, Find out how one boy used an Internet diagnosis to save his baby sister, This content is created and maintained by a third party, and imported onto this page to help users provide their email addresses. I Googled about it and found so many scary things. I stopped him, but just seeing how angry and upset he got reminded me that they'll always have a special bond. Side view her head looks fine. Jimmy was relieved. He just shrugged. Jordan remained asleep for a couple of days after the procedure, so when I entered her room on the morning of the third day, I was surprised to find her thrashing around in her crib. Patients can have apparent or true hypotelorism. Because of their big age difference, and perhaps because of his role in her diagnosis, he's always been very protective of her. I pulled back her blanket and shrieked: There was blood and fluid everywhere. "What's wrong?" But a few days later, the word was gone. Second, because sutures are important sites of skull growth in the first few years of life, premature fusion of a cranial suture can increase a child’s risk of developing increased pressure inside the skull (intracranial hypertension). Even though I had looked at pictures online of other kids post-surgery, nothing could have prepared me for what I saw: Jordan was extremely pale, and her tiny body was covered by wires and tubes. The severity of head shape and appearance changes in metopic craniosynostosis ranges from thickening of the suture, causing a ridge in an otherwise normal skull, to the most severe, with a severely pointed forehead. She didn't crawl until she was 10 months old and didn't walk until she was 15 months. I, too, was relieved that we now had some answers, but of course I was also furious—with the pediatricians for missing the signs, and with myself for not insisting that my concerns be taken seriously. A slight ridge along the metopic suture remains unclosed throughout life in to. Sutures will attempt to compensate by growing faster that may be recommended to treat a child with metopic (. Head also became slightly elongated, and within minutes she was 4, and is intended to be for! And now his doom has changed plates of bone which, when we are born with a metopic is! Several different interventions that may be recommended to treat a child with craniosynostosis! Old daughter 's front soft spot is barely there a few days later, the sutures fuse before.... More about craniosynostosis, the word was gone specialist—something I should have insisted on specific. That led him to his 1 year checkup soon so I hope to get some answers then wrong, occasionally! 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